Went back to Jim today to get the results of Chase's biopsies from the scope a couple weeks ago. Is it just me, or does anyone else expect actual, real, definitive results from doctors? I guess I realize it's not an exact science, but it's pretty frustrating.
Trisomy 21= Down syndrome. Concrete. Definite. Proven by a little picture with all those little chromosomes lined up with the little arrow pointing to the extra guy.
Severe Inflammation of the entire GI tract= Well, it may be that he has too much acid. So we'll try Prevacid and see if it works. If it doesn't, there might be something else. We can test for it later. But it probably isn't, so we're not going to test now. But just so you know, he may have Autoimmune Gastroenteritis, which is as scary as it sounds, but probably not. So come back in 4 weeks and we'll see how he's doing.
I was just hoping for a "We found the problem. He has too much of this or too little of this. We're going to give him this medicine every day and it will be totally fine." Ah, well.
At least we know definitely that it is not lactose intolerance or celiac. ALl his little enzymes are doing their jobs. No one is missing or lazy. But here I am, guessing again about why my little dude can't digest a dang thing.
AND. Prevacid is freaking expensive. $50 a month! I asked the pharmacist about it, because it seems awfully pricey for an antacid. He said that it's normally $140. Right. Well. $50 a month it is. I'm going to look into a Target Pharmacy Buy 10 Get 1 Free punch card or something. Or maybe Fill 10 Perscriptions and Get a Free Shopping Trip voucher. Whatever you can get into your cart while your 10th scrip is being filled, you get for Free.
I'll keep you posted.